Have your doctors talked to you at all about adding domperidone for the gastroparesis? I have a horrible time with Reglan, and had to be kept at very low doses as a result. After my 3rd admittance to the hospital with intractable vomiting in 4 months they suggested it, and I've never been better. It's not FDA approved, so I have to have it compounded, but it's still readily available from Canada online. Next step was a gastric pacemaker. I also use Zofran and Carafate as needed, and Prevacid and am doing really well at the moment.

Christine- since reglan worked for me, and my insurance covers it, I never tried domperidone. I do have a compounding pharmacy nearby that makes it if things change.

Thankfully I am down to two doses of reglan / day (from four previously). Things are going well enough with transplant that at least for now, I don't need to try anything new :)

But thanks for bringing it up!